Bridging the Gap in Diabetes Education for Rural Texans

Research Project Case Study

Overview

This graduate research and design project aimed to address the challenges of diabetes management in rural Texas, where resources are limited, medication cost is high, and diabetes education resources are scarce. Based on several types of research, we developed a four-point strategic plan that would set the groundwork for future efforts in establishing an array of web- and community-based resources.

My Roles and Responsibilities

I was one of 11 team members. And while I made varying contributions to each subteam (research, multimedia, content, etc.), I did lead the web subteam.

Supporting research team

Through performing a literature review, competitive analysis, and heuristic evaluation, I contributed to additional research.

Translating research insights into strategy

Leveraging research insights, I authored the service design-based strategic framework that would guide the entire project.

Leading web strategy

While leading the web team, I directed all usability, accessibility, heuristic, and structural recommendations for the web portion of this project.

Rebuilding information architecture

I audited the previous website structure and designed a new information architecture based on research insights and overall strategy.

View full list of team members

EndoMD Team

The team consisted primarily of 11 UNT interaction design graduate students, two UNT professors, and our primary client/stakeholder.

Lydia B.

Multimedia lead

Aqsa C.

Content lead and research

Giselle E.

Research lead

Fatima H.

Research

Rebekah I.

Research and content

JiYun K.

Research and web

Sushma K.

Multimedia lead

Kendrick M.

Project lead

Luis Merino (me)

Web lead

Bansri S.

Research and web

Christina T.

Visual branding lead

Michael Gibson

UNT Professor

Cassini Nazir

UNT Professor

Dr. Wasim Haque

Client/Stakeholder

Background

EndoMD.com, created by Dr. Wasim Haque, was an educational resource aimed at informing patients and colleagues about diabetes risks and management. Dr. Haque sought to expand his outreach to patients, especially elderly rural Texans. We would dig into the problem and make research-backed recommendations for the future of EndoMD.

Here is what we knew about the experience of rural diabetic patients:

Resources are limited. Human resources, such as physicians or healthcare providers, are limited. In Denton county, one primary care physician is demanded to provide services to 1,721 patients.

Cost of medications is high. The financial toll that diabetes management takes on lower-income patients distracts them from taking their medications on a regular basis.

Lack of understanding. The failure of the healthcare provider and patients to understand it is a progressive disease. In many cases, it is not the patient’s fault that patients are not able to control their diabetes. They are doing what they can do.

Animated screenshot of the old endomd website that should outdated graphics, layout and styles.
EndoMD.com was Dr. Haque’s online diabetes resource.

Part 1

Discovery

Our first tasks were to dig into the topic of diabetes and begin to frame the problem we would be solving. As a team, we engaged in the following activities:

Screenshot of mural board showing many stickies, notes, diagrams about diabetes, Dr. Haque and more.

Stakeholder meetings

We met several times with Dr. Haque and his team to better understand the medical importance of diabetes and establish goals and direction for the project.

Topics learned were:

  • Diabetes 1 and 2 basics
  • Diabetes distress
  • Known challenges
Screenshot of mural board with various links to more than a dozen articles with stickies.

Literature review

From our stakeholder meetings, we knew there were many topics to unpack including senior medical care, diabetes distress, the rural experience, telehealth, and misinformation.

An example included:

Screenshot showing themes and topics aggregated through affinity mapping.

Affinity mapping

We aggregated insights and takeaways from our stakeholder meetings and literature reviews on digital stickies. In an online workshop, we used affinity mapping to create groupings or themes. Some of these included:

  • Diabetes distress
  • Medical advice
  • Expectations in proposed solutions
Screenshot of a mural board representing the sitemap for Endo MD.

My Responsibility

Information architecture audit

I mapped out the existing architecture of the EndoMD website to visually understand its structure and flow:

  • 76 total pages
  • 40 internal pages and articles
  • 16 external pages and content

The website navigation indicated there were three main sections, but upon close review of the sitemap, the bulk of the website content was the repository of blog posts under the “Knowledge Center” section. This showed an uneven structure.

I also discovered that this content was buried three levels of pages and that there were a handful of duplicate pages.

Screenshot of "What Are Ways" stickies used to brainstorm approaches to our project.

“What Are Ways”

The team also performed a “What Are Ways” activity to do some early-stage ideation on solution approaches. The top ranked ideas were:

  1. Promote a sense of ownership within patients
  2. Simplify the confusing jargon around diabetes
  3. Utilize community resources in the management of diabetes
Screenshot showing notes, questions, and diagrams about our research methods and action plan.

Research preparation

We aggregated questions that we knew we needed to ask actual diabetics patients and educators. We also developed a plan for research triangulation which included a mix of methods:

  • In-depth interviews
  • Usability testing
  • Observations
  • Literature reviews
  • Competitor/collaborator analysis
  • Heuristic evaluation
Screenshot of our mural board showing the creation of different subteams.

Formation of subteams

Based on all our discovery activities, we know that branding, research, website, multimedia and content needed to be focus areas in the remainder of the project. So we formed subteams around these needs.

See a full listing of all team members in the overview section.

Our Problem Statement

We aim to investigate the communication channels that exist for pre-diabetes and diabetes patients by interviewing multiple stakeholders and exploring best practices in order to create a more engaging and comprehensible medical resource.

Part 2

Research

The research team conducted over nine interviews and eight usability tests with diabetic patients, educators, and experts to understand the challenges being faced by the rural Texas community.

Research Methods


In-depth Interviews

Research team conducted six interviews with people living with diabetes from Texas and three interviews with healthcare professionals

Observations
  • “Am I really taking the best medication for me? I could Google it, but would I even trust it?”
  • “[Diabetes] affects literally every single aspect. It changes everything.”
  • About rural life: “Driving is nothing. 40 minutes. An hour.”

Usability Testing

Research team directed eight usability tests with older adults on existing EndoMD and similar websites. All participants were 40 or older.

Observations
  • “I like things short, sweet, and simple.”
  • “I would expect to find keywords in the title of the videos.”
  • “One thing that helps people with diabetes is to know that other people are also going through it.”

Research Insights

The following eight insights were distilled from all primary and secondary research methods performed by the entire team.

Community is essential

Healthcare systems fail diabetic patients

Diabetes education is not standardized

Misinformation causes a lack of trust

Language should be digestible by all

Information should be easy to find

Testimonials build trust

All screens should be responsive

Part 3

Building a Strategy

The next step was to build strategic planks, or what we were calling strategic “building blocks.”

Reviewing all research insights, takeaways, and known barriers, we mapped out what these five building blocks would be:

Screenshot of our mural board where we mapped research observations, to barriers, to themes, to strategies, to deliverables.

The Five Strategic Building Blocks

These building blocks would support each one of our recommended channels and would be weaved throughout the remainder of this project.

Educate

Provide comprehensible information to inform and enhance the quality of life for diabetics.

Clarify

Enhance the dialogue with the patient so that communications are more clear and concise.

Encompass

Support social inclusion for people with disabilities, older adults, and people in rural areas.

Build Trust

Strengthen the relationship with each patient
by providing relevant information for them.

Care With Empathy

Understand the personal experience and various needs of the patient.

My Contribution

The Engagement Model & an “Array of Services”

Armed with research and insight, our team fully came to the conclusion that our recommended solution should be an array of services. Using service design thinking as a framework, I ideated on possible approaches to implementing this “array of services.”

Visual showing sketched diagrams of the engagement model evolving.
Various sketches showing how I arrived at the unengaged, activated, and maintained model.
Diagram of the engagement model. From unengaged (meaning little or. nointerest in diabetes managment). toactivated (which means they're ready to learn and engage), to maintained (they've learned and applied most of the diabetes management tactics and are managing well.)

The array of services would span across all phases of a person’s journey with diabetes and push them to overcome the barriers they face. We would recommend services designed to move patients toward action and engagement.

Part 4

Web Strategy

I led the development of the remainder of our web strategy, based off these building blocks:

Educate

Thanks to the knowledge and resources offered through the website, our audience can become empowered and confident enough to further engage in their own diabetes care.

Clarify

Our audience has a hard time reading long paragraphs of technical English, because it might be their second language. To maximize their ability to learn, the website will feature resources that are clear, understandable, and easy to find.

Encompass

Our audience’s only access to the internet might be on their 10-year-old smartphone and only when they’re in-town. So, the website will be navigable and usable on slow-speed mobile devices.


The Process

Diagram of original sitemap.

Old sitemap analyzed

The first step to finding clarity was analyzing the site’s previous IA. Navigation, content, video embeds, and hierarchy were all things that needed to be addressed.

Screenshot of an IA workshop we did where we mapped web pages to each step of the engagement journey.

Aligning IA to strategy

We organized existing content by engagement phase methodology: unengaged, activated, and maintained. We also created scenarios of use for each phase.

A reworked sitemap showing website sections aligning with our engagement model.

A new sitemap

Usability testing and interview insights served as organizational principles for new IA.


A New Information Architecture

Diagram showing a simplified version of the new sitemap.

Primary navigation

  • The primary nav should be redesigned to follow the engagement phases
  • The site would be streamlined to only 38 pages
  • Heavier medical topics would be carefully layered in
  • We recommend adding a community component

Audience navigation

  • This new feature would allow for the aggregation and curation of content depending on who the user is:
    • People with pre-diabetes
    • People with gestational diabetes
    • People with type 1 diabetes
    • People with type 2 diabetes
    • People who are caregivers to those with diabetes

Utility navigation

  • Meant for the general/about pages of the website
  • A resource library would serve as an overall index of the site and its topics, showcasing content in different formats
  • A glossary would help users quickly refer to any word or topic they might not know, since there is so much technical language with diabetes

Conclusion

Branding, Content & Multimedia

This last section covers the strategies and foundational frameworks crafted by the other teams.

Composite graphic showing new EndMD logo, style guide, documents, and colors.

Branding Strategy

The brand team established a trustworthy and memorable brand identity centered around healthcare and diabetes management. This was achieved by utilizing recognizable healthcare-related colors, a logo featuring a depiction of a syringe, clear typography, and designing with a senior-friendly approach in mind.

Based on: build trust, clarify, and encompass.

Content Strategy

The content team executed primary and secondary research to build accessible content that addressed the unique needs of rural populations.

Based on: build trust, clarify, and encompass.

Screenshot of a slide explaining how the content strategy provided options on how to consume media to keep them engaged.

Multimedia Strategy

The multimedia team explored elevating educational content through short videos. Their aim was to increase engagement and retention, accommodate for visual and auditory learning styles, and build trust with audiences.

Based on: educate, clarify, and build trust.

Next Steps and Handoffs

This team has set the groundwork for the future research and design work that is yet to come. We provide a proposed plan for how this work could continue.

The building blocks could help drive design decisions moving forward. The evolution of this service design should try to:

  • Educate
  • Clarify
  • Encompass
  • Build trust
  • Lead with empathic care

While the list is not exhaustive, using the metaphor of building blocks creates a versatile system of design principles that can be removed, replaced, stacked, and arranged in multiple ways.